Every year on June 13th, the global community observes International Albinism Awareness Day a day dedicated to promoting understanding, protection, and support for persons living with albinism. Albinism is a rare, non-contagious, genetically inherited condition that affects people of all ethnic backgrounds worldwide.
It is caused by the absence of melanin — the pigment responsible for the colour of the skin, hair, and eyes. The 2025 theme, “Demanding our rights: Protect our skin, Preserve our lives,” draws attention to the health and social challenges faced by persons living with albinism, especially regarding sun exposure, vision problems, and discrimination.
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A medical expert explains that albinism is an inborn error of metabolism. It occurs when an important enzyme, tyrosinase, which helps produce melanin, is missing. Without enough melanin, the skin is left unprotected from harmful ultraviolet rays, leading to a higher risk of sunburn and skin cancer.
A lady living with Albinism, Miss Darlington Tekena, opened up about the struggles she faces every day. On her part, Onyekachi Victor, a woman living with albinism, who shared a more confident view, said she embraces her identity and feels special — but still takes precautions to protect her skin.
As the world marks this day, the call is clear — beyond awareness, there is a growing demand for health protection, equal rights, and social inclusion for persons with albinism.
